| Factor Information | |
|---|---|
| Data ID | 363 |
| Factor | health-related quality of life (HRQoL)---General health |
| Description | Health-related quality of life (HRQoL) and psychological adjustment (PA) are important parameters of outcome in young adults with CHD. |
| Biomarker | NA |
| Classification | Z (combined factor - combined factor) |
| Association | |
|---|---|
| Application | prognosis |
| Objective | The aim of this study was to identify medical and psychosocial risk factors for impaired health-related quality of life (HRQoL) and poor psychological adjustment in young adults with congenital heart disease (CHD). |
| p Value | <0.001 |
| Conclusion | Young adults with CHD have impaired physical HRQoL but normal mental HRQoL and psychological adjustment. Lower physical exercise capacity, female sex, less social support, and lower educational level predict an unfavourable quality of life and psychological adjustment. This subgroup of patients should be monitored more closely and provided with special psychosocial care to improve long-term outcome. |
| Risk Factor | unknown |
| CHD Type | |
|---|---|
| ID | 443 |
| CHD Type | isolated CHD/non-isolated CHD |
| CHD Subtype | BAV/RVSD/MVD/PVS/AVD/ASD/VSD/SVD/PDA/CoA/EA/PS/AVSD/SVAS/HCM/TOF/DORV/RVD/Shone's Complex/PA/ccTGA/TGA/ES/C-CHD/other |
| Reference | |
|---|---|
| PMID | 30239653 |
| Year | 2019 |
| Title | Predictors of quality of life in young adults with congenital heart disease. |
| Sample | ||
|---|---|---|
| Population | young adults | |
| Source | questionnaires | |
| Region | Zurich, Switzerland | |
| Method | When written informed consent was given, the questionnaires were handed out directly or sent by post. | |
| Race | Europe | |
| Disease History | N/A | |
| Treatment History | N/A | |
| Group | Patients(Treatment) | Controls(Control) |
| Number | 188 | 139 |
| Age | 24.7 (18-30 years) | 24.2 years |
| Gender (Male: Female) | 108:80 | 79:60 |
| Marker Level | 73.3±20.1 | 82±14.2 |
